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Join the Fight Against the Devastating Realities
of ME/CFS and Long COVID

Open Medicine Foundation (OMF) is the leading non-profit organization dedicated to funding and advancing global collaborative research for Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) and Long COVID.

Since 2012, we’ve raised almost $55 million and established six global Collaborative Research Centers. From pioneering clinical trials to publishing new studies, we’re committed to finding treatments and a cure for these debilitating diseases. 

We’ve built a global network of over 200 scientists, collaborating and sharing research findings in real-time. Our esteemed 20-member Scientific Advisory Board, featuring a Nobel Laureate and five National Academy of Sciences members, ensures the highest scientific excellence standards drive our research.

67 Research Projects Funded- 37 Publications 12 studies recruiting through StudyME Registry 3 Clinical Studies 11,963 Healtcare professionals reached through Medical Education

The Harsh Reality of ME/CFS

Over 20 million people

have ME/CFS worldwide

3.3 million

are affected in the USA alone

Estimated 70% cannot work

25% are homebound

No diagnostic test

No FDA approved treatment. No cure

Huge economic burden

36-51 billion dollars
per year in the USA

ME / CFS
affects

men, women and children.
Anyone. Any time.

Long COVID: Millions Are Still Sick

Up to 400 million

are affected with Long COVID worldwide

$1 trillion

of annual global economic impact

Only 7-10%

of people are fully recovered after 2 years

6 million children

in the US have Long COVID

No diagnostic test

No FDA approved treatment. No cure

Long COVID
affects

men, women
and children too.

Facing the Challenges
of Long COVID

As a successful science communicator loved by millions worldwide, Dianna Cowern, known as Physics Girl, reveals her daily battle with Long COVID in an eye-opening livestream. Once active and thriving, Dianna now faces persistent symptoms that have drastically changed her life. Watch Dianna’s Livestream to see how this condition has profoundly impacted her and many others.


Play Video about Dianna seriously ill, lying in bedin bed

What is it like to
Live with Severe ME/CFS?

Whitney Dafoe’s journey through severe ME/CFS is a heartbreaking testament to the extreme suffering endured by those with this disease. Once full of life, Whitney is now confined to a bed and unable to communicate or care for himself. Witness Whitney’s Story and understand the profound impact of this disease.

The image shows Whitney laying in a bed on a brown pillow with a towel over his eyes. On the right side of his chest, he has a medical tube attached.
Our role in the solution

OMF leads the charge in ME/CFS and Long COVID research, funding groundbreaking studies and collaborating with top scientists. Learn about our initiatives and how your support helps drive progress. 



Myalgic Encephalomyelitis / Chronic Fatigue Syndrome (ME / CFS) Post Treatment Lyme Disease Syndrome (PTLDS), Fibromyalgia Leading Research. Delivering Hope.Open Medicine Foundation®

What are the advantages of giving from your Donor Advised Fund (DAF)?

  • Your gifts to your donor advised fund entitle you to an immediate income tax deduction at the time of contribution.
  • You avoid capital gains tax on appreciated assets you place in your donor advised fund.
  • Your fund’s investment gains accumulate tax free.
  • Funds are distributed to Open Medicine Foundation in your name and immediately put to use to support our worldwide research efforts.


How do I make a donation through my DAF?

Just click on the DAF widget below. It is simple and convenient to find your fund among the over 900 funds in our system.

Still can’t find your fund? 

  • Request a grant distribution through your Donor Advised Fund sponsor
  • Be sure to use OMF’s EIN #26-4712664
  • You can also designate OMF as a beneficiary for your Donor Advised Fund
  • Questions? Give us a call at 650-242-8669