As we approach ME/CFS Awareness Day on May 12, we reflect on the life-altering impact of this debilitating disease.
Characterized by profound fatigue, cognitive impairment, pain, and a range of other disabling symptoms, ME/CFS often leaves people housebound or bedbound—unable to take part in activities that others often take for granted. Despite affecting millions worldwide, ME/CFS remains widely underrecognized and misunderstood.
Today, we share the story of Bridie, a long-time school librarian, artist, and creative spirit, whose life has been drastically altered by ME/CFS.
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Bridie's Story
Before ME/CFS, Bridie was living a life full of creativity and social connections. Work and art gave her life a sense of purpose. “I’ve always painted and created things. I was social, enjoyed sharing meals with friends, and worked in a school library for 19 years,” Bridie shares.
ME/CFS strips away not just physical energy but the freedom to live a normal life. Bridie’s world, once full of vibrant activity, is now confined to the walls of her home.
“Now, my world is small. I am mostly housebound. I need a power wheelchair (which I don’t have yet), my husband pushes me in a manual wheelchair. I rarely see my friends and can’t cook, clean, or even watch a full movie. A shower takes all my energy for the day. I’m unable to work and rely on a disability pension.”
Bridie’s experience reflects the deep isolation that many with ME/CFS face. Even with support from loved ones, the sense of loss—of independence, friendships, and normalcy—is profound.
“Very few people understand what it’s like to have severe ME/CFS. It’s incredibly isolating and frustrating, and some days, I’m overwhelmed by grief for all I’ve lost and the uncertainty of my future.”
“I’m fortunate to have a husband who cares for me, a mother, and two kids who understand my challenges. A few friends have stuck by me, and I wish I were well enough to see them more often.”
Bridie’s story highlights the urgent need for greater awareness, research, and support for those living with ME/CFS. Let’s make this ME/CFS Awareness Month a turning point.
Join our May Momentum campaign and raise your voice louder than ever before. Support ME/CFS research by donating, sharing Bridie’s story, and spreading the word about this life-altering disease.
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